The start of it all

Since information about histamine intolerance and the troubles histamine can cause in one’s body is scarce, I started this blog.

The first step

Summer 2009 I had a little operation done by me GP,  for which I got a local anaesthetic. Afterwards I got terrible allergic reactions, a runny nose so bad I stuck tissues in my nose, eyes that were tearing up, and I was constantly sneezing, which feels exceptionally wonderful if you just got your head stitched up. To be short I  was feeling really awful. And I noticed a lot of these problems got worse or started whenever I was outside.

Hay fever?

I had suspected I had hay fever for quite a while but never bothered to get tested,  I was a healthy girl who loved being outside and studied biology, so of course I couldn’t have hay fever. But after that horrid reaction I started to pay more attention to when and where my reactions started.

I had been suffering from strange reactions and illnesses for quite some years, and it once again had gotten worse that spring. One of those were terrible headaches that had plagued me for years, and that year they had gotten even worse, some days I could only lay down keeping my body very still,  as every movement of my head hurt like crazy.  I was deliberating if I should check myself into a mental hospital since the medical world thought I was either just making it up, as they couldn’t find any prove for my symptoms and thought they were psychosomatic, or just kill myself off or something. Those weird reactions of my body were driving me insane and withholding me from living my life the way I wanted to.

No hayfever?

So finally I got my blood tested for allergies, but I didn’t have any. Weird, since I was pretty sure I reacted badly to the outside air which pointed to a reaction to pollen. And the anti-histamines I squeezed out of my doctor, were really good with keeping certain symptoms in check. An acquaintance said I should visit an allergy specialist, she thought I could suffer from pseudo allergies, which weren’t widely recognized by most doctors but an allergy specialist should know more about this.
So I went. I got my arms splashed with droplets of all kinds of different possible allergens,  some kind of solution as control test as well, and a scratch test which consisted of just scratching my skin with some kind of pencil. Once again I didn’t test positive for any kind of allergy. Though I got quite an oversensitive reaction to control test  and the scratch that had been made on my back.
Once again I thought it was all for naught, and I would just be told it was all in my head, I was oversensitive and should learn to deal with it. Much to my surprise the first thing the doctor asked was if I needed more anti-histamines to help me. She explained I probably had an intolerance for histamine, which could give me bad reactions to even the slightest things like a breeze of fresh air. But also reactions to pollen, since those could lead to a histamine reaction in normal people as well, and with a high histamine load present those reactions could get quite severe and mimic hayfever She also directed me to a nutritionist to help me with a diet to control my intake of histamines.

Realisation

I was happy to get some recognition, but was very suspicion about the truth of it all. Was this really it? Just like that? As I’m a biology student with an interest in the molecular and neurosciences I read about every paper and site I could find on the internet and the university library. And still do. A world opened up for me, as I found out I wasn’t crazy at all, it wasn’t just in my head. I was suffering from something real.
The diet and anti-histamines turned my life upside down, had I always been feeling tired, sick, depressed and just right out awful I soon started to feel great. So great. I started to be afraid that I was suffering from some kind of manic episode. Luckily I didn’t. 😉

Since there are many misconceptions about histamine and the problems it can cause, or things that can help I decided to start this blog, to keep myself informed by storing all useful information in one place, but also to inform others.

Published in: on February 16, 2010 at 7:15 pm  Comments (8)  
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8 CommentsLeave a comment

  1. hey, just got diagnosed with histamine intolerance. thanx for the very useful information on this blog, i’ll keep reading!

  2. Thanks. And please do keep on reading. I hope to collect a large amount of information about histamine and histamine intolerance. If you ever have any suggestions, please mention them.

  3. Heb je interesse om (prive) ervaringen en info uit te wisselen? We hebben veel gemeen wat betreft symptomen/diagnose en ik heb er ook al een lange zoektocht opzitten en wordt langzaam aan steeds wijzer. Heb ook biologie gestudeerd.

  4. I just found your blog and I think you saved my life. Dr.’s haven’t been much help, they’re trying to convince me that I have COPD and I won’t take most of their medicines since I knew that my bronchitis ( for the last year) have been caused somehow by the foods, vitamins and other supplements that I’m taking. Unfortunately I also have Celiac Disease, but I’m sure that now I can get on a low histamine diet, maybe take some antihistamine and I’ll be fine. Please keep up your great blog ! ! !

  5. I commend you for codifying your knowledge here on the web. You are thereby a great help to sufferers like myself. I also think that you just launched a career in biology and medical research.

    I recommend you connect with Sue Shephard, a nutritionist in Australia. She is a pioneer in recognizing and treating fructose intolerance. That said, some of her patients may only get partial relief from her low-fructose diet. These patients may suffer from histamine intolerance as well. She therefore may like to hear your story. Then again she may already be quite cognizant of this, as she’s pretty sharp, but you may enjoy sharing knowledge with her.

    I myself suffer from fructose intolerance and am finally coming to terms with also suffering from histamine intolerance. In addition, I suffer from (in order of discovery) lactose intolerance (1991), and gluten and casein (2005). My symptoms erupted in force after a river rafting accident in 1998 where I ingested contaminated water. My life was misery until the gluten and casein diagnosis in 2005. What I really would like to know is what is the etiology of this all? I am thinking of sponsoring a research prize in this area.

    • I have the impression the person who started this blog is not active anymore.

      A couple of years ago I suffered badly from histamine intolerance and salicylate sensitivity and in the end I was down to only 10 basic foods I could tolerate. At that point I found this story:
      http://www.foodsmatter.com/allergy_intolerance/food_intolerance/articles/worms_for_food_intolerance.html

      After reading about helminthic therapy and the ‘old friends’ hypothesis I decided to take the plunge. In the years that followed most of my food intolerances cleared up and currently I am back to a normal balanced and healthy diet.

      Personally, I think the science behind this therapy is fascinating!

  6. Hi, thank you for this blog, what a revelation. It connects a lot of dots for me.

    Haven’t read your whole blog yet, but did you ever consider cutting gluten and/or dairy? My own histamine reactions are getting much better now that I am gluten and dairy free.

    Thanks again!

  7. Love. I had symptoms all my life and finally heard of histamine intolerance via google. So spot on. Thanks for sharing!


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